- ICR Facebook Group – this is only for people with ICR
- Jaw Surgery Facebook Group – For all types of Jaw Surgery
- TJR Happiness is a private group and so I can’t link directly to it.
- If you message me from the other Facebook groups I will gladly get you added.
Resources from Global Genes (rare disease advocacy group):
- Toolkit For The Undiagnosed
- Gaining Independence as a Young Adult with a Rare Disease
- You can find many more toolkits & resources at Global Genes
- The Jaw Story (Fantastic and very informative video on TJR due to arthritis)
- TJR Replacement Blog (Due to a horrific fall, she has documented her journey very well and gives a great account of how long and trying this process can be. She very recently had surgery and is on the recovery side of TJR)
- Jaw & Face
- TMJ Hope Website
- My Jaw Journey
Recipe Ideas & Resources for understanding a puree diet:
- COMING SOON! My recommended recipes to get you through the torture of a liquid and soft food diet
- Guide for puree diet
Get to Know Your New Joints: (Joint Manufacturer Websites)
Dr. Wolford’s website has a wealth of information on the disease and surgery. (There are many great surgeons. I only link to Dr. Wolford because he was my surgeon and I can only speak to my own experience- which was wonderful!)
Peer Reviewed Papers I Found Useful:
You Can Do Your Own Research:
The fact that you are here tells me you are invested in your health and want to learn all you can about this disease/surgery and that is great! If you wish to dive deeper I suggest reading some medical research papers. They can be searched through:
PubMed.com – is an online library of medical research.
Google Scholar– is a free search engine that lets users look for both physical and digital copies of articles. It searches a wide variety of sources, for peer-reviewed articles.
Tips for Reading Research Papers:
- Typically it is easiest to focus on the abstract.
- The upper right hand corner will sometimes have links to full articles for free.
- Copying and pasting the Title and Author into a search engine will sometimes provide a link to a free version.
- Often an email to the author will result in them sending you the pdf for free.